Epizyme rolls out rare blood can­cer ef­fort with pa­tients' sto­ries and friend­ly dig­i­tal coach

When Bob K. was di­ag­nosed with fol­lic­u­lar lym­phoma, he wasn’t even sure how to spell the name of the rare blood can­cer. Now, as spokesper­son for Epizyme’s “In My Blood” dig­i­tal cam­paign, he and oth­er fol­lic­u­lar lym­phoma (FL) pa­tients are talk­ing about their ex­pe­ri­ences with the type of non-Hodgkin’s lym­phoma, along­side a new kind of dig­i­tal coach.

“My Fol­lic­u­lar Lym­phoma Coach” is ac­tu­al­ly re­al-life hema­tol­ogy and on­col­o­gy nurse prac­ti­tion­er San­dra Kurtin, who in­tro­duces her­self in a video on the web­site. She asks the per­son watch­ing to be pre­pared to an­swer some sim­ple ques­tions about their di­ag­noses, adding that her goal is to “take some of the un­cer­tain­ty out of liv­ing with fol­lic­u­lar lym­phoma and pre­pare you to en­gage in a proac­tive part­ner­ship with your health­care providers.”

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