Pa­tients, ad­vo­ca­cy groups launch fight against Trikaf­ta patents in four coun­tries

Gayle Pledger’s daugh­ter has cys­tic fi­bro­sis, a painful and de­bil­i­tat­ing ge­net­ic dis­ease that sent her to the hos­pi­tal every three months for five years.

That is, un­til she start­ed tak­ing Ver­tex’s Trikaf­ta. Since Pledger’s daugh­ter start­ed tak­ing the drug, she hasn’t been hos­pi­tal­ized once.

Pledger, oth­er fam­i­lies and ad­vo­ca­cy groups have since launched a glob­al ef­fort to in­crease ac­cess to Trikaf­ta, and on Tues­day, the groups an­nounced that they’ve pe­ti­tioned four gov­ern­ments to al­low gener­ic ver­sions of the drug.

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