Pharma companies can connect with rare disease patients in Health Union's newest social community.

Rare in com­mon: Health Union's newest so­cial com­mu­ni­ty aims to con­nect across rare dis­eases

Rare dis­eases, by de­f­i­n­i­tion, are small cat­e­gories with few­er pa­tients. Yet, the in­di­vid­u­als and fam­i­lies deal­ing with some of the 7,000+ rec­og­nized rare con­di­tions share com­mon ex­pe­ri­ences. De­layed di­ag­noses, in­sur­ance chal­lenges and find­ing physi­cian ex­per­tise are typ­i­cal chal­lenges across most rare con­di­tions.

So Health Union is cre­at­ing a new on­line fo­rum to con­nect peo­ple un­der a broad­er rare dis­ease um­brel­la — and al­so give phar­ma com­pa­nies an­oth­er way to con­nect with those pa­tient in­flu­encers. Health Union’s es­tab­lished so­cial net­work of pa­tient groups in­cludes eight spe­cif­ic rare dis­ease groups, along with dozens of more com­mon health con­di­tions from asth­ma to thy­roid eye dis­ease, but the new RareDis­ease.net aims to in­clude any­one with a rare con­di­tion.

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