Rare in common: Health Union's newest social community aims to connect across rare diseases
Rare diseases, by definition, are small categories with fewer patients. Yet, the individuals and families dealing with some of the 7,000+ recognized rare conditions share common experiences. Delayed diagnoses, insurance challenges and finding physician expertise are typical challenges across most rare conditions.
So Health Union is creating a new online forum to connect people under a broader rare disease umbrella — and also give pharma companies another way to connect with those patient influencers. Health Union’s established social network of patient groups includes eight specific rare disease groups, along with dozens of more common health conditions from asthma to thyroid eye disease, but the new RareDisease.net aims to include anyone with a rare condition.
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