Alnylam ambassador, artist and AHP patient Amalia paints in her home studio. Amalia's work is featured in a new Givlaari campaign

Al­ny­lam draws on pa­tient artist’s strik­ing de­pic­tions of life with a rare ge­net­ic dis­ease in new ad cam­paign

Col­lege stu­dent Amalia had just be­gun her fresh­man year when she came down with flu-like symp­toms that wors­ened in­to de­bil­i­tat­ing stom­ach pain and even­tu­al­ly an in­abil­i­ty to eat or drink. While doc­tors strug­gled to de­ter­mine the cause as months wore on, Amalia turned to art and paint­ing to ex­press her pain and hope­less feel­ings.

She was even­tu­al­ly di­ag­nosed with the rare ge­net­ic dis­ease acute he­pat­ic por­phyr­ia (AHP) — and now both Amalia and her art are fea­tured in Al­ny­lam Phar­ma­ceu­ti­cal’s lat­est cam­paign for its med Givlaari, ap­proved in 2019 to treat AHP in adults.

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