Alnylam takes a family road trip to talk about health history and heredity in new rare disease campaign
Alnylam Pharmaceuticals is hitting the road with a genealogist and health educator in its latest digital campaign around hereditary ATTR (hATTR) amyloidosis. The host, genealogist Bernice Bennett, leads the crew around the country to talk to a physician expert along with families affected by the rare genetic condition to discuss their experiences, and sometimes difficult family conversations.
hATTR amyloidosis is an autosomal dominant disease, meaning each child with a parent who has the genetic variant has a 50% chance of inheriting it. An estimated 50,000 people in the world have hATTR — including about 10,000 to 15,000 people in the US — but some 35,000 remain undiagnosed.
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