Fa­ther starts lab af­ter in­tel­lec­tu­al prop­er­ty is­sues stymie rare dis­ease drug de­vel­op­ment

Casey McPherson shows his daughters Rose (left) and Weston around Everlum Bio, a lab that he co-founded to spark a treatment for Rose and others with ultra-rare conditions. (Ilana Panich-Linsman)

Un­der bright lab lights, Casey McPher­son holds his 6-year-old daugh­ter, Rose. His free hand di­rects Rose’s gaze to­ward a com­put­er screen with po­ten­tial clues in treat­ing her one-of-a kind ge­net­ic con­di­tion.

Gray specks on the screen show her cells that sci­en­tists re­pro­grammed with the goal of ze­ro­ing in on a cus­tom med­i­cine. McPher­son co-found­ed the lab, Ever­lum Bio, to spark a treat­ment for Rose — and oth­ers like her. A re­gard­ed singer-song­writer, McPher­son nev­er imag­ined go­ing in­to drug de­vel­op­ment.

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