Carli (with her service dog Patience) and Erin (with her service dog Pine) talk about living with an ultra-rare disease in a new Ipsen-sponsored TikTok.

Ipsen match­es rare dis­ease and Tik­Tok in­flu­encers to cre­ate con­nec­tions

Ipsen’s new spon­sored Tik­Tok fea­tures the pop­u­lar “Of course” trend and two so­cial in­flu­encers, but with a rare dis­ease twist. The short video shows two young women, Car­li and Erin, us­ing the fa­mil­iar di­a­logue as a way to ex­plain the symp­toms and adap­ta­tions they make in liv­ing with fi­brodys­pla­sia os­si­f­i­cans pro­gres­si­va (FOP).

“I have FOP, of course I have a straw in my purse since that’s the on­ly way I can drink,” Car­li says as she reach­es in­to her hand­bag.

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