Majid Jafar at the World Economic Forum at Davos (World Economic Forum / Christian Clavadetscher)

They had promis­ing gene ther­a­pies for their daugh­ter's ul­tra-rare dis­ease. But how to tell if one worked?

About two years ago, Ma­jid Ja­far, CEO of the 50-year-old Emi­rati oil firm Cres­cent Pe­tro­le­um, found him­self with a prob­lem of his own mak­ing, one …

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